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His skull was melting... and no one knew why

MrBallen · 3,719 words · 17 min read

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0:00Today, I'm going to tell you three

0:01medical mysteries. And all of these

0:03stories end with diagnoses that are so

0:06bizarre, they'll leave you thinking, "I

0:08didn't even know that was possible."

0:10But, before we get into today's stories,

0:12if you're a fan of the strange, dark,

0:14and mysterious delivered in story

0:15format, then you've come to the right

0:17place, because that's all we do, and we

0:19upload two, three, even four times every

0:21week.

0:22>> [music]

0:22>> So, if that's of interest to you, please

0:24offer to do the like button's laundry.

0:26Don't tell them you're going to do their

0:27laundry in their dishwasher. Also,

0:30please subscribe to our channel and turn

0:32on all notifications, so you don't miss

0:34any of our weekly uploads. Okay, let's

0:36get into today's stories.

0:53One morning in 2017, a 25-year-old man

0:57named Wataru Abe Takuya stumbled into

1:00the Keio University Hospital in Tokyo,

1:02Japan. Takuya felt sweaty and feverish,

1:05and his head was pounding, and he also

1:08had one hand kind of cupped over his

1:10right ear, because his ear was literally

1:13leaking fluid. But, Takuya was not

1:15scared by these symptoms. Instead, he

1:18actually felt sort of annoyed, because

1:20this was actually not the first time

1:22these symptoms had happened to him. So,

1:24Takuya had this long history of

1:27something known as cholesteatoma, which

1:29is basically a recurrent cyst that grows

1:31deep inside the ear canal. When he was a

1:33teenager, he'd had multiple surgeries to

1:36have the cyst removed and keep it from

1:38coming back. And for almost a decade

1:40now, it had seemed like the surgeries

1:42had worked, because the cyst had [music]

1:44stayed gone. But, about 2 weeks earlier,

1:47he'd begun having this this [music]

1:48constant drainage coming out of his ear,

1:51which was, you know, a sign that the

1:52cyst was back. Now, when this began

1:54happening, initially, he had sort of put

1:56off going back to the hospital, but now

1:59he was pretty sure the cyst had caused

2:01him to develop an ear infection, which

2:03would now explain his fever and his

2:05headache, and so [music] here he was.

2:07So, Takuya made his way to the check-in

2:09desk at the hospital with one hand still

2:11kind of keeping the liquid in his ear,

2:13and as he's standing there, he explained

2:15his symptoms and his medical history to

2:16the receptionist,

2:18who nodded, you know, took down all of

2:19his information, and quickly admitted

2:21him to the emergency room. About half an

2:23hour later, Takuya was laying in his

2:25emergency room bed with his eyes closed

2:27because the light in the room was so

2:29intense, it was, [music] you know,

2:30making his headache worse. But, even

2:32with his eyes closed, he knew there was

2:34a hospital doctor standing right beside

2:36his bed. And he listened as the doctor

2:38went over the results of some of the

2:39tests they had run. The doctor said that

2:42based on Takuya's medical history and

2:44the fluid clearly leaking out of his

2:45ear, they were pretty sure that he was

2:47right, and that his cyst had returned

2:50and led to what was now a severe ear

2:52infection. He said that very likely

2:54Takuya would have to have another

2:55surgery to get rid of the cyst again.

2:58But, the doctor didn't want to operate

3:00just yet because he said they had an

3:02even bigger problem to deal with first.

3:04Based on the preliminary blood tests,

3:07the doctor said it looked like Takuya's

3:09ear infection had gotten so bad

3:11>> [music]

3:11>> that the infection had actually spread

3:13to the tissue surrounding his brain.

3:15And this was obviously extremely

3:17dangerous, primarily because it could

3:19lead to permanent brain damage and even

3:21death. And when Takuya heard this, I

3:23mean, on one hand, he was obviously

3:25shocked. I mean, this was more [music]

3:26than he expected, of course.

3:28But, more than that, he just felt mad at

3:30himself because he knew that if he

3:32hadn't waited so long to come to the

3:34hospital, this infection likely wouldn't

3:36have gotten this bad. I mean, he's known

3:38about this for 2 weeks. He just [music]

3:39kind of didn't want to deal with it, and

3:41now it was obviously much worse. But,

3:43regardless, you know, it was too late

3:45now,

3:45>> [music]

3:46>> so Takuya, despite the light, opened up

3:48his eyes, and

3:49he asked the doctor, you know, what

3:51could they do?

3:52And the doctor said they were going to

3:54have to admit him to the hospital, not

3:55just the emergency room,

3:57>> [music]

3:57>> and start him on a very powerful dose of

3:58antibiotics. Two weeks later, Takuya was

4:02still in the hospital.

4:03>> [music]

4:04>> And at this point, he was actually lying

4:05on his back, and he was being basically

4:07rolled inside of a CT machine, which

4:10basically is like this big white [music]

4:11ring that goes over your head, and it

4:13scans the inside of your head. So, by

4:16this [music] point, the antibiotics he'd

4:18been prescribed had worked, and Takuya's

4:20infection [music] had been cured.

4:22But, despite that, his ear was still

4:26leaking fluid on and off, not

4:27constantly, but it was definitely still

4:29happening.

4:29>> [music]

4:30>> So, because of that, hospital doctors

4:32had ordered this CT scan specifically so

4:35they could look inside of Takuya's head,

4:37and basically map out exactly how they

4:40were going to operate on his ear. Takuya

4:42laid perfectly still for about 5 minutes

4:45while the CT scan machine took pictures

4:47of the inside [music] of his head. And

4:48then when it was done, the nurse pulled

4:50him out, and then led him back to his

4:51hospital room. And then, a little while

4:53later, a hospital doctor came into the

4:56room holding some papers, and the doctor

4:58told Takuya that, you know, based on the

5:00CT scan he had just done,

5:01>> [music]

5:02>> he actually didn't need another surgery

5:04on his ear. And immediately, Takuya felt

5:07so happy and so relieved because he

5:09thought, you know, another surgery was

5:11practically inevitable.

5:13But, that happy feeling only lasted for

5:15about [music] a second

5:17because then the doctor, who, you know,

5:19just delivered this news, sort of

5:21shifted and had this really troubled

5:23look come over [music] his face, and

5:24they told Takuya that, well, the reason

5:27you don't need another surgery is

5:29because there is no cyst in your ear at

5:31all. The real problem that was causing

5:34all of your symptoms was much, much

5:36worse. Then, from his stack of papers,

5:39the doctor handed Takuya an image from

5:41the [music] CT scan.

5:42When Takuya looked at it, he could not

5:45believe what he saw. It would turn out

5:47Takuya had an extremely rare condition

5:51[music] called Gorham's stout disease,

5:53which is more commonly known as

5:55vanishing bone disease. It happens when

5:58a person's body just [music] randomly

6:00starts breaking down and consuming their

6:02own bones. And [music] in Takuya's case,

6:05his skull was now literally

6:08disappearing, almost like [music] a like

6:10a melting ice cube. And that fluid that

6:12was leaking out of his ear was brain

6:14fluid that was now basically flowing

6:17through the holes in his skull. [music]

6:20Now, unfortunately, at the time of the

6:22story and still today,

6:24>> [music]

6:24>> there is no known cure for Gorham's

6:26stout disease. The best doctors can do

6:29is basically plug up the holes where

6:31they begin to disintegrate. [music]

6:33And that's exactly what they did for

6:34Takuya. They used a special glue and

6:37literally kind of plugged up the holes

6:39in his skull.

6:40But amazingly, it sort of worked because

6:43Takuya's doctors monitored him for bone

6:45loss and fluid leakage after they did

6:47this. And as of his most recent checkup

6:50in 2018, at least in terms of what's

6:52been publicly released,

6:54he appeared to be doing quite well.

7:07Hey guys, I have some pretty big news. I

7:10know many of you are excited to hear. I

7:13am going to be doing another live

7:15storytelling tour this year. You can

7:17find me in a bunch of cities, including

7:19new ones on the West Coast and across

7:21the United States, where I have never

7:23played before. Plus, I'm really excited

7:25to share that I will also be performing

7:28in an international city, since so many

7:30of you have been asking me to visit. We

7:32put together an absolutely amazing show

7:35with a whole bunch of awesome stories,

7:37including stories you will not hear

7:39anywhere else. New content you can only

7:42get if you come to this show. And guess

7:44what? Tickets for this tour are

7:46available right now at

7:48tour.ballenstudios.com.

7:50In terms of the types of tickets you can

7:52buy, they range from general admission

7:54to VIP. Again, that's

7:56tour.ballenstudios.com.

7:58I'm also going to be giving away a trip

8:00to meet me at one of my live shows. And

8:03so, if you want to enter for your chance

8:04to win that, all you have to do is

8:06donate to win at fandiem.com/mrballen.

8:10Again, that's f a n d i e

8:13m.com/mrballen.

8:17Get your tickets and enter the

8:18sweepstakes today. I can't wait to see

8:20you at the show.

8:30One afternoon in late January of 2018, a

8:33father named Dan Levitas stood inside

8:35the bathroom that his three kids shared

8:37inside [music] of his house in Madison,

8:39Wisconsin.

8:40Dan grabbed his kids' toothbrushes and

8:42threw them right in the garbage. Then he

8:44sprayed the counters, the sink, the

8:46mirror, basically every surface he could

8:48see with [music] disinfectant and began

8:50wiping everything down. So, Dan was

8:52doing this [music] because he, his wife,

8:54and their three kids all had strep

8:56throat. And according to their doctor,

8:59the best way to get rid of it was

9:00basically to have everybody take

9:02antibiotics and to deep clean the house

9:05to get rid of all the bacteria that had

9:07caused the infection.

9:08>> [music]

9:08>> However, as Dan, you know, followed

9:10protocol and scrubbed down the bathroom

9:12counters, [music]

9:13he felt sort of frustrated because this

9:15was not actually the first time that his

9:17whole family had come down with strep.

9:20Over just the last four months, his

9:22whole family had gotten strep six times.

9:26And no matter how many antibiotics they

9:27took or how many times they deep cleaned

9:30the house and all the bathrooms, it's

9:32like they always got sick again. And

9:34this was really baffling to Dan because

9:36he was actually a biologist and so he

9:39knew a lot about bacteria and he'd

9:41already explored practically every

9:43option for where this repeated strep

9:45infection could be coming from. Nobody

9:47else at his or his wife's work was

9:49getting sick [music] and neither was

9:51anybody at his kids school or daycare so

9:53he knew it couldn't be coming from any

9:54of those places. But this didn't make

9:56any sense either because each time they

9:58got strep, all six times, Dan and his

10:02wife,

10:02>> [music]

10:02>> you know, systematically disinfected

10:04like the entire house. I mean really

10:06overboard cleaning every surface.

10:09So [music] if there was bacteria

10:10somewhere in the house, it had to have

10:11been cleaned up by now.

10:13But it was like somehow the bacteria was

10:17surviving the disinfecting.

10:18>> [music]

10:19>> He just didn't know where it could be.

10:21But regardless, Dan still dutifully went

10:23to about, you know, disinfecting the

10:25bathroom for the the sixth time here.

10:27Then when he was done, he went into the

10:29kitchen where he had his whole family's

10:31antibiotic prescriptions stacked up on

10:33the counter. Dan took his own and then

10:35also grabbed doses for everybody else.

10:37Dan brought antibiotics to his two

10:39daughters who were six and three years

10:41old and who were also both lying in

10:43their beds looking completely miserable.

10:45Then he went into his and his wife's

10:47room where he found his wife sitting up

10:49in bed cuddling with their very sick

10:51one-year-old son.

10:52Dan handed his wife the antibiotics and

10:55then looked down at his son. He looked

10:57so small and vulnerable and it just

10:59killed Dan to think how many times this

11:01poor kid had been sick and how powerless

11:03he was to help him. Dan didn't know what

11:05else to do here. He and his wife were

11:07following doctor's orders here but this

11:09is again the sixth time and clearly

11:12nothing's changing so the advice is not

11:13really helping.

11:15It just sort of felt like they were

11:16trapped and couldn't get out of this

11:17awful situation. But then as Dan was

11:20standing there feeling sort of defeated,

11:22he thought of something.

11:24His mother was a retired pediatrician

11:27and she might have different advice for

11:29how to handle this.

11:30So he sat down in bed, took out his

11:32and he called his mom to ask for help.

11:35And Dan's mom actually did have a theory

11:37about where this strep bacteria was

11:39coming from and how to get rid of it.

11:41>> [music]

11:41>> But, because Dan was, you know, a

11:43biologist and really understood how

11:46bacteria functioned,

11:48>> [music]

11:48>> he knew her theory was sort of out

11:50there. Like most scientists and medical

11:52professionals, for that matter, would

11:54say that his mom's theory was basically

11:56not possible. But, at this point, Dan

11:59and his family were desperate enough

12:00that they were all ready to try

12:02something new. So, Dan decided he would

12:05try out his mother's theory.

12:07And so, he began looking for an expert

12:09to [music] help him do that.

12:10But, all the experts Dan got in touch

12:13with, when they they heard about what

12:15this theory really [music] entailed,

12:17they turned it down. Like nobody was

12:19prepared to do this.

12:21And so, for Dan, it felt like he was,

12:22you know, right on the cusp of maybe

12:25finding the answer here and maybe

12:27curing, you know, his family of this

12:29horrible problem,

12:31but no medical professionals would even

12:33entertain it as a possibility. About a

12:35month later, in early March, Dan was

12:37inside of a hospital room sitting next

12:39to his wife, and they were both staring

12:41down at their three-year-old daughter.

12:43She was lying in a hospital bed hooked

12:45up to an IV and an oxygen mask,

12:47>> [music]

12:47>> because she'd gotten strep throat for a

12:49seventh time.

12:51And this time, [music] she'd gotten so

12:53sick, she'd also developed pneumonia.

12:56And so, realistically, at this point,

12:58Dan and his wife weren't even sure if

13:00she was going to survive. And for Dan, I

13:02mean, he was on the verge of a complete

13:04[music] breakdown here. He was convinced

13:06that the only way to protect his kids

13:08was to find somebody who would test his

13:10mother's theory, but Dan and his wife

13:12had already been turned down by

13:13basically every expert in the entire

13:16state. And so, Dan really didn't know

13:18who to turn to at this point. But, as

13:20they sat in the hospital room watching

13:23their toddler fight for her life,

13:25Dan's wife suddenly turned to him and

13:27said, "What if instead of asking medical

13:29professionals for help,

13:31what if we try asking medical students?

13:34>> [music]

13:34>> Maybe a student would be more willing to

13:36test out this theory, you know, even if

13:38it did seem kind of crazy." Dan agreed.

13:41At this point, it was definitely worth a

13:42try.

13:43>> [music]

13:43>> So, they reached out to the University

13:45of Wisconsin. And this final Hail Mary

13:49actually worked.

13:50On April 4th, 2018, so about [music] 6

13:53months after the first strep outbreak in

13:54their house,

13:56Dan and his wife took one very specific

13:59thing [music] from their home and

14:01brought it to the University of

14:02Wisconsin. The student they'd contacted

14:05then analyzed this thing and was

14:07determined, after their analysis, that

14:10Dan and his family's crazy theory

14:13was correct.

14:14>> [music]

14:14>> It would turn out Dan, his wife, and

14:17their three kids were not the only ones

14:19in their home suffering from strep

14:22throat. There was actually a sixth

14:24victim.

14:25Their pet cat. Now, most veterinarians

14:28didn't believe that cats could even

14:30catch [music] strep, let alone transmit

14:32it to humans. So, they all refused to

14:35test the family's cat. That's why they

14:36kept saying no. It was not until Dan

14:38contacted the University of Wisconsin

14:40Veterinary School that a student [music]

14:42finally agreed to do it. And lo and

14:44behold, the test came back positive for

14:47the exact same strain [music] that the

14:49family kept on catching. Their cat kept

14:52giving them strep. Dan's 3-year-old

14:54daughter would make a full recovery from

14:56her pneumonia.

14:57>> [music]

14:57>> And after another round of antibiotics,

14:59including antibiotics for the cat, and

15:02one more deep clean of the house, the

15:04family's strep throat finally went away

15:06for good.

15:18>> [music]

15:23>> On September 30th, 1964,

15:25a 44-year-old woman named Charlotte

15:27Lawrence stood with her husband outside

15:29the door to her parents' apartment

15:31[music] in a little city in southwestern

15:33Germany. Charlotte took a deep, shaky

15:35breath and then unlocked the door and

15:38stepped slowly into her parents' home.

15:40So, Charlotte was here because both of

15:43her parents had suddenly died just a few

15:45[music] days ago.

15:47They'd only been 70 and 76 years old and

15:50they'd both been in good health, but her

15:52father had suffered a massive heart

15:54attack right in their kitchen

15:56>> [music]

15:56>> and when her mother found him, she also

15:59had a heart attack, apparently out of

16:00shock. Now, Charlotte's mother had

16:02managed to call a doctor,

16:04>> [music]

16:04>> but by the time the doctor arrived, both

16:06Charlotte's dad and mom were deceased.

16:08[music] Now, Charlotte and her husband

16:10had flown into Germany that morning from

16:12Wisconsin, where they lived,

16:13>> [music]

16:14>> and up until this point, Charlotte

16:16really had been holding her emotions

16:18together. But now, standing in her

16:20parents' living room and looking around

16:22at all their belongings, it was like all

16:24of the grief just poured [music] out of

16:26her and she just broke down and sobbed.

16:29So, her husband, not really knowing what

16:30else to do, just turned [music] on the

16:32TV and sort of guided Charlotte over to

16:34the couch and told her to to sit down

16:36and and rest for a bit before they had

16:38dinner. They actually had plans that

16:40evening with the next door neighbor.

16:41[music]

16:42She was this elderly woman named

16:43Caroline. And Caroline had offered to

16:45come over and cook dinner for them. And

16:47also Charlotte's uncle, Dieter, [music]

16:49planned to come over as well after

16:50dinner since he lived nearby. About 30

16:53minutes later, Charlotte is still

16:54sitting on the couch just kind of

16:56relaxing and watching TV.

16:58Caroline, the neighbor, showed up and

17:00she showed up with two big bags of

17:01groceries and she went right inside the

17:03house and right into the kitchen and

17:05began cooking. And pretty soon, the

17:07entire apartment smelled like comfort

17:09food, which made Charlotte feel

17:11admittedly a lot better.

17:12>> [music]

17:13>> Eventually, Caroline called out that

17:14dinner was almost ready. So, at that

17:16point, Charlotte got up, she went into

17:18the kitchen and sat down at the table

17:20next to her husband. And then, after the

17:22food was served, they all ate dinner

17:24together while they waited for her uncle

17:26Dieter to arrive. [music]

17:27Not long after, Uncle Dieter arrived and

17:30knocked on the front door of the

17:31apartment.

17:32But, after a full minute, nobody came to

17:34the door.

17:35So, he knocked again.

17:37But, there was still no answer. Dieter

17:39could hear the TV on in the living room,

17:41but he couldn't hear any voices inside

17:43or the sound of anybody moving around

17:45inside the apartment. So, after a couple

17:47of minutes, he just decided he would let

17:49himself in.

17:50As Dieter walked through the living

17:52room, he began calling out for

17:54Charlotte, her husband, and for

17:55Caroline.

17:56>> [music]

17:57>> But, still, nobody called back. And

17:59there was no sound of anybody moving

18:01inside the apartment. It was just

18:02totally still.

18:04And so, Dieter, he couldn't help but

18:05feel a little apprehensive. Like, this

18:07is weird. Like, where is everybody?

18:09What's going on? They were expecting me.

18:12He walked out of the living room and

18:13into the kitchen. And there, he saw

18:15Charlotte, her husband, and Caroline all

18:17sitting at the table eating their food.

18:20But, something was wrong.

18:22All three of them were just sitting at

18:23the table, and their plates were, you

18:25know, half-eaten right in front of them.

18:28But, nobody was moving. It was like they

18:29were all just kind of stationary, just

18:31kind of staring straight ahead. And so,

18:33Dieter, he sort of he bent down and he

18:35was like, "Charlotte, what's going on?

18:37What's What are you guys doing?"

18:40But, when he got a good look at

18:41Charlotte's face

18:42>> [music]

18:42>> and Caroline's face and Charlotte's

18:44husband's face, his stomach just dropped

18:46and he

18:47>> [music]

18:47>> he backed away, totally horrified. What

18:50Dieter saw was so terrifying, so eerie,

18:53so awful, it actually made international

18:56news.

18:57And that apartment would even get a

18:59nickname,

19:00the death house. Charlotte's parents did

19:03not just have spontaneous heart attacks

19:05on the same day and die. That's not what

19:07happened. It would turn out that toxic

19:10sewer gas had been [music] leaking into

19:12the apartment through a broken pipe in

19:14the kitchen sink. That gas poisoned both

19:18of Charlotte's parents and caused their

19:20hearts to stop basically at the same

19:22time. Now, nobody thought to check for

19:25sewer gas poison, so Charlotte and her

19:27husband came to stay at her parents'

19:29apartment without any idea that the

19:32apartment was still full of this toxic

19:35gas. And so when Dieter finally came

19:37over for dinner, he found Charlotte, her

19:39husband, and Caroline all sitting around

19:42the kitchen table sort of frozen there

19:45because they were dead. Dieter,

19:47fortunately, after seeing this,

19:49immediately [music]

19:50left the apartment to go call the

19:51authorities. And it was that decision

19:54that ultimately saved his life.

20:03Thank you so much for watching. Let me

20:05know what you thought of today's episode

20:06in the comments. And remember, we have

20:09hundreds of videos for you to binge

20:11right now. But, if you're looking for a

20:13recommendation from me of that one video

20:15that's worth your time, well, it's this

20:18one right here. So, give it a watch.

20:20All right, until next time, see you.

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