Full transcript
0:0311 - year-old weighs [ in ] boys Arya is very famous , so I feel happy . son Indonesia
0:27We feel [ we went ] from village life , from the countryside , then joined in and were considered celebrities by the media and television parties .
0:48If it's not controlled , this could really become fatal , it could even lead to death . Now , top obesity expert Dr. Grace Studio will observe Arya at close quarters in an attempt to uncover the truth . If this carries on , the future
1:08for Arya will remain dark . Arya suffers from his parents over him . Mother , what you're doing is killing him , you know .
1:31Arya wants to go to college , sir . Until what is Arya's dream ? I become village
1:58of lives that is not with Arya's friends . Why ? Because I'm fat . How much ? Uh , like this . Like this , how is that ? Very tight . 11 - year-old Arya is the
2:24world's heaviest child . Only his body is huge . His thinking is still like a child's . I want to get thin quickly so I can play with friends again , can play anywhere .
2:44Arya is a normal and healthy child , but he can't climb , or run fast . Everything in Arya's body is healthy , but Arya can't do certain things . His weight right now , he can't do it
3:05either . If I'm already thin , I want to try so that I get thin quickly , sir .
3:27When Arya was born , we were very happy . Then Arya was 1 year , 2 years , 4 years old , normal . At 5 years old , Arya started looking fatter and fatter . So he eats like he has no sense of being full . In one meal , two packs of
3:51noodles plus two eggs , more than 1/2 kg of chicken meat , plus rice , he can eat 4 to 6 times a day . I want to eat constantly . When Mom cooks every day , I wait for it , I like to tell Mom to cook fast . insatiable
4:13appetite gained stone as he grew so Arya here is already famous because he is often covered , like a celebrity .
4:34So I feel happy seeing many people coming to visit . They want to take photos with him . He is famous for having the biggest body in the world . Surely all of Indonesia wants to take a
4:55photo with Arya . But we as parents are indeed very happy . In the last two years , Arya's fame spread far and wide . Yes , Arya . Mm . Because many media covered him , he was on TV , then Arya was given money , food , and clothes by
5:15the Regent of Purwakarta . It really is the only way to earn a living in this house ; it really helps our family . Then between the ages of and Arya's weight reached a critical point . His health deteriorated dramatically . The saddest thing was at
5:41that time , when Arya wanted to get up just to walk 5 meters , his breath was already gasping . So we were worried about Arya at that time . The boy
6:03suffering from extreme obesity , Arya Permana , was forced to return home . The cause was Arya slipping when he was about to line up for the flag ceremony . Ar is perhaps one of the heaviest cases of obesity in the world . If it's not
6:25controlled , this could really become fatal , it could even lead to death . A team carried out genetic and hormonal tests . And from the examinations , we found something interesting regarding his TSH
6:46thyroid levels , which were high . TSH or thyroid stimulating hormone was not enough to explain his morbid obesity . The doctors decided to look more closely at Arya's intake and ask the family to keep a food diary . Sometimes I cannot believe everything they say because when we ask Arya , "
7:09Arya , did you eat noodles ? " " Yes , yesterday I ate two packs of noodles . " But in mom's book , there are no noodles recorded at all . And then when we ask , he says , " Oh yeah , I forgot to write down the noodles . " Wow , that was not
7:24long ago , right ? In a final bid to save his life , the hospital is joining forces with a leading weight control specialist from Jakarta . Dr. Grace Judio is a physician and behavioral scientist who runs private clinics across Indonesia . This is a very particular case , a very difficult one .
7:45190 kilos is really big , and Arya is still a child . Dr. Grace will spend an intensive two days with the family at their home . I would like to observe his behavior and then try to rule out any possible cause that we might have missed , and let's see whether we can find a way to
8:02help him . Will she be able to uncover the truth about his mysterious weight gain and find a way to save the world's heaviest child ? Dr. Grace will be
8:24spending two days with 11 - year-old Arya Permana and his family . She will be searching for any clues that may explain his extraordinary weight . An astonishing situation . One thing which worries me is the lack of education , whether the family understands what nutrition is all about or even bothers
8:45to know . I am also looking at the interaction between Arya and his family and his friends , their beliefs and perceptions of food , and the eating habits of the family . To get her first view of the world's heaviest boy , I
9:12will observe Arya and how he functions daily . What he is doing and his interaction with his friends and his teachers , because they will form a support network for him . Hello . Hello . Sir . I am Dr. Grace . Oh , yes , yes , I am
9:33Arya's teacher . Oh , hi , Arya . How are you ? I am Dr. Grace . What book are you reading ? A book . My Aspirations . What do you want to be when you grow up , Arya ? Oh , okay . Remember this later . This is a good book for you , Arya .
9:53I want to be a train engineer . A train engineer . On the road , I can also see the scenery , and the trains are really good now . School plays an important role for Arya . He needs to have a daily routine to keep him busy so he is not
10:14just focusing on food . It looks like he is doing well at school . No low IQ , and no developmental delay . I also found out that children at school call him names , even though people are being super friendly to him and look like
10:35they are being helpful , and he did not take it seriously ( denial ) . He has to live with it . He looks like he is fine , but it is actually burdening him in a way . It’s heavy , sir . I can't take him far , maybe only 6-8 minutes of walking without stopping .
10:58I think he realized that he is big and he is different . Which one is your house ? Arya . After school , Dr. Grace heads home with Arya to meet his family . She wants to ask his mother and father about Arya's struggles . So , how is Arya's daily
11:22routine from morning until night , Ma'am ? For a year and a half , he hasn't slept at night . Yes , we just keep him company while he drinks like this . Arya was scared to
11:42get on the scale . I think he's traumatized by looking at his weight . He's also scared to find out whether his weight increased or decreased . Sure . With Arya hiding in his bedroom , his father is there to welcome their guests . If he gets weighed , he's afraid of feeling like his diet didn't succeed .
12:03Even though , thankfully , there has been a slight decrease . I just wonder myself , is there anything that is contributing to his eating behavior ? Is he really hungry , or is he just craving food ? Grace takes a tour
12:28of the kitchen . He's about to eat now , you see . I'll open it , okay ? I was asking her , " Can you show me the
12:48kitchen ? " She said yes . She is occupied with making him eat . It's past 12 , and you can see Arya in the background ; he doesn't want to eat , somehow he's on strike because we are here . Let me open it , move aside .
13:09Somehow they have it in their subconscious mind that he has to eat , whether or not he wants to , because now you can really hear that Arya doesn't want to eat , but it makes them worried so they push him . She even looks for different choices of food . Thinking maybe less healthy food will attract
13:27him . And he still says no . And they're still knocking on the door and waiting in front of the door for him to open it to eat . They have some diet products
13:47already here , but I think it's just the box . There is a lot of white rice . The doctor recommended that he eat red rice . This is fried . You see the fat is
14:08floating . This is beef in coconut milk . And it's very , very oily . You can really see that the oil is probably 50 % of the whole dish . The kitchen reflects his prognosis for weight loss . If they don't change it , I'm afraid any program
14:29will fail . I don't know . My impression is that they're not trying hard . They're not really trying hard enough . Arya and his family live in a rural region of Indonesia where poverty is a
14:49widespread issue . Arya's dad works as a security guard at a local factory while his mom is unemployed . But Arya's status as the world's heaviest child has opened the door . We learned that Arya was the largest child in Indonesia
15:10, and perhaps the largest in the world . Arya was invited to Jakarta , and invited to Japan . Arya is very famous . So I feel happy . We felt like people from the village , from the countryside , who were suddenly brought together and treated like celebrities by the media , local
15:31television , and even abroad . Recently , the family were flown to Japan to appear on a popular game show . The doctor is concerned that this media attention is making it harder for Arya to commit to losing weight . Probably they also enjoy the attention and I
15:51just wonder how this story will end . Before coming to any conclusions , Dr. Grace is keen to rule out any medical or genetic conditions which could be
16:13contributing to Arya's weight gain . However , even a simple physical assessment proves difficult . Breathe out , please . Very , very thick fat under the skin . My hand is all inside . I think I better do it when
16:33he's lying down . You can really hear him not breathing properly . The tongue goes backward and it's blocking his airway . He can suffocate himself . He can stop breathing . Arya , how much do
16:54you want to be slim , or at least a weight that is ... 100 % . How much , from here to there ? I learned that basically he is willing to exercise and to do a healthy diet . It seems like he does not have a complete understanding of what he should and should not eat . At this
17:17point , I would say that he's very cooperative and the parents might be the biggest challenge . It's day two of Dr. Grace's investigation at the family home .
17:39So , today I'm going to look at what Arya actually eats day-to-day . How they cook it , how they prepare it , and then see how we can modify it , because what they're doing is not acceptable . But when she gets there , Arya isn't ready to start the session . Buying a
18:00million-rupiah phone . Hey , wake up . The point is , for those close to Ence , friends of Ence , the highest is 10,000 for Ence . Arya is manipulating his mother , saying that if you can just be patient ... You can be successful , you
18:23can ask for a reward , a new phone . With expectations . Grace takes her to a nutrition session . Arya . Do you want to lose weight ? Yes . Really ? Let's go . Make it comfortable . Which one ? Which
18:47one ? A Samsung , a Samsung , a 2GB Samsung with a memory card . Just for this , always buying a phone . No. Huh ? Do you want to buy a phone ? Do you want to buy a phone now ? Yeah .
19:08Do you want to lose weight or buy a phone ? Buy a phone . I don't want to lose weight . Huh ? Okay , just sit down , alright . Who is Arya acting like ? Why ? Why , Mom ?
19:33That's enough , Ma'am . That's enough , Ma'am . Just do this , Ma'am . No , Ma'am . This is important . I'm afraid if you get angry . Ma'am , Ma'am , please sit here . I feel weak ,
19:54Ma'am . Ma'am , I want to explain this to you . Arya always just wants his own way . This program will never succeed . And in the end , Ma'am , what you're doing is killing him . No , dear . You'll be healthy , but he will die . Every time he wants something , he will
20:16cry like that . Don't be angry at me , Ma'am . It's not that . Oh God , please don't . No. I want to help you . When was the last time you told Arya that he was being disrespectful ? It's a very sad scenario which I see today . Interesting things is that everybody in this
20:34household has issue . Arya being a very fragile boy need to manage his emotion and he does not have the guidance that is necessary for him . The parents are not teaching him how to face life and life will be much mean than just a weight loss program . I've become
20:58I guess I am the most to blame , right ? I regret it because the mistake was me not controlling his eating . I keep feeding Arya constantly . I do it
21:21because I love my son . Arya once asked me why he's so big . I told him it's because he eats too much . If he gets angry , if he's really upset , Uncle . What makes Arya fat is because of eating . Then who is feeding him ? You said it
21:42was your fault too , right ? But the problem is , this is an unhealthy parent-child relationship . An unhealthy parent-child relationship . A healthy child shouldn't constantly manipulate their parents . Meaning if
22:04this things carries on then the future for Arya and his family will remain dark . He may die young still as a child . After an enlightening two days , Dr. Grace realizes that the family need a major intervention . ultimatum if for
22:30example you want the program then we will help . I'll give you some time to think . I'm going back to Jakarta . I'll be waiting for Arya and his parents in my clinic Monday morning at 9 . I hope
22:50they show up . It's been three days since Dr. Grace returned to Jakarta , having left Arya's parents with an ultimatum . She hopes they will acknowledge that they need help and
23:11accept her offer to treat their 30stone 11 - year-old son . It's probably the only chance for them to have a proper management , not just weight , but emotional problem , surrounded obesity . If Arya and his parents don't come today , it will be a big mistake . Yes ,
23:36you've arrived . Okay , yes . I was very happy to see Arya and his parents come . Arbang took swabs from his genetic .
24:03When food enters his body , it absorbs twice as much fat as a normal person . So that is what makes him gain weight more easily than others . Nothing can escape ; it absorbs everything . Now , that is what is happening with Arya . Arya must first learn the motivation to achieve his goals . This is about
24:25motivation , yes . That must also be helped later for Arya by you , Mom and Dad . They using food as reward . They using food as source of entertainment . They using food as a sign of affection that contributes a lot to Arya's weight . If , for example ,
24:46his weight doesn't go down and keeps going up , what will happen to Arya ? Paralysis ? You can write down paralysis . The session makes them think about the consequences , make it real because somehow everything is so abstract for them . Yes . According to Arya , Dr. Kris , the
25:09people who come here want to help Arya lose weight quickly . It's a bit of a long walk to that floor over there . This is the value . And if a lot goes in , he ...
25:35Be careful with the yolk , what is it called ? The yolk must be discarded . The egg white is fine in large amounts . Maybe according to the doctor , the cooking wasn't right . Not the healthy way to cook it before . Previously three times . Three times .
25:55Then we can take it with tempeh . Tempeh . ... If you , Mom and Dad , are
26:16serious , hopefully it can happen as soon as possible . Thank you . I read a glam of hope with Arya and his family that he going to have the
26:39Yes , what the doctor explained earlier about the diet , a lot about the calories . I am confused , actually , I’m dizzy thinking about how to
27:02manage Arya’s diet . ... plan A diet means food that is also regular . I find it hard to find it . Use this for what is allowed to be
27:23eaten , okay . Yes . Now , this is more than two , yes . Yes . Now , this rice is 200 , it’s nice . Arya is still a child , after all . If Arya wants snacks , like noodles , Ale-Ale drinks , ice cream , or chocolate
27:44ice — those things — he doesn’t listen , he doesn’t follow . The doctor only said he had to exercise and diet . About snacks , nothing was ever told . What did Mom say about chocolate ice , is it actually allowed to buy chocolate
28:06ice ? Never said anything . What was said was only ice is not allowed , right ? It’s not allowed either , right ? He buys chocolate ice , not just plain ice . H We thought we could handle Arya’s weight initially , but we realized we
28:26were wrong in this because we need support and Hello , Doctor , good afternoon . Thank God , I'm fine . How are you , Doctor ? Are you healthy ? I'm good . Yes . Have you started eating healthy ? I have started , Doctor . Even though it's a bit difficult . Actually , I don't
28:47like that food , I'm just not used to it yet . They think that a program is too difficult for him . They also might be lacking creativity . Dr. Grace warns that if the weight loss plan is already
29:08proving too difficult for them , Arya's health will deteriorate rapidly , putting his life in danger . If Arya is not losing weight , then I'm afraid that he's at risk of developing cardiovascular diseases . He might have a stroke even though he's young , he might have diabetes . Concerned that his parents might completely abandon
29:29helping Arya lose weight , the doctor makes a final and much more radical suggestion . Surgery . If you , sir , want something faster , we can consider surgery . Oh , I see , I see . With this surgery , at the very least ,
29:51his stomach capacity can be managed . So there won't be any chance to overeat , which helps him lose weight consistently . I want to share something
30:13. I don't allow surgery because I am afraid Arya might die , I am afraid something might happen , I am just afraid , basically . Concerned by his mother's reluctance to consider all options and recognize the urgency of her son's plight , the doctor decides upon a new approach . In 2016 , a case
30:36made headlines across Indonesia . A 28 - stone boy , just two stone lighter than Arya , died suddenly in his sleep . His mother , Naning , is determined to help other families understand the potentially fatal consequences of childhood obesity . Before making a
30:57final decision about surgery for they agree to meet Naning . I am just a villager , a layperson . I trust the doctor . Whatever is said to be healthy , I believe . The meeting with the mom whose son died from obesity
31:17will make them think more and it will change their mind . They might consider gastric stapling . When Wahid died , I felt guilty because perhaps it was my fault for letting him eat and eat and eat , and I just kept giving in , sir . I
31:42am Wahid's mother . Yes , ma'am . Arya . This is Wahid . This was 3 days before Wahid passed away . I have been through what you are going through with Wahid . It is not just relatives who judge , everyone blames
32:03the mother . The mother . His mother . So you can imagine how painful that is . Yes . That is why I came all this way to come here . Regarding the surgery , ma'am , I actually feel scared . What are you scared of ? I am scared because Arya is healthy , his body is healthy . He is
32:25healthy right now . Uh . If I had another chance , if I could , what is it ... To raise , to look after Wahid . I would take him to the doctor . But back then , I was constrained by costs . The offer for the surgery is from Omni Hospital . So the costs are free . We
32:49don't have to spend any money at all . You've already turned things upside down . I am not ready yet . Arya's parents , Arya's father . There is already a chance , an opportunity , why not use it ? I will continue to provide input to my wife . The point is how
33:09dangerous Arya’s future will be if he doesn’t get treatment now . Nanning's tragic story has convinced our day that immediate action needs taking if they are to reverse Arya's weight gain . Now
33:34he and his mother Ray must come to an agreement about whether to meet the bariatric surgeon Dr. Handy Wing . What do you think , Mother ? Are you ready for tomorrow , Andi ? Well , I’m still thinking about it ; when he suggested surgery , in my heart ,
33:56I didn’t allow it yet . Ma'am , have you thought about what will happen to Arya in the future ? If Arya wants to go to junior high , senior high , and eventually get married to reach his dreams . I do think about whether
34:17his body will get smaller or not . But is there any other way to shrink Arya's body besides surgery ? The problem is we were too careless in feeding Arya . I am not at home , Mother . Whatever Arya wants ? It’s always given to him . The important thing is we
34:38go there tomorrow and meet Dr. Handy . Then see what he suggests and what he wants . Basically , for Arya's own good , let's just accept it first . If the doctor suggests ways to treat Arya , I am willing . based Arya the surgery ,
35:14gastric is a good option to regain his health . As we know with conservative medical management the result is not too good . So we need to become more aggressive . I hope today I can help the family to make a life changing decision . Will Dr.
35:39Handy be able to convince Arya's mother that this surgery will save his life ? Despite her misgivings about surgery for 11 - year-old Arya , his mother Ray has agreed to meet with one of the
35:59country's top bariatric surgeons , Dr. Handy Wing . The surgeon is prepared to operate on area in a desperate attempt to reverse his life-threatening weight gain . Gastric sleeve surgery involves removing a large part of the organ leaving a new smaller banana-shaped stomach . The procedure also lowers the
36:21amount of hunger hormones that the body can produce making sustained weight loss much more achievable . Arya parents come from rural area . So they always have a stigma about bad things happen always in the surgery . Even if the doctor says he must be operated on , I still don't want it . I
36:42am afraid of surgery , Sir . The most difficult ones are me and Mom . It feels like every day Mom is taking care of Arya . Arya was happier like before , Uncle . Heavy . So that it can be handled quickly . where life is like that . We have three patient already done the
37:04surgery . So they have the brief introduction about what really happened after the surgery . With a life like that , if his parents don't take this step , I'm sure Arya's life won't last much longer . He wants to be a train engineer . Once Arya is operated on , all life problems
37:26are finished . We have finished his life problems , it seems . but Arya won't , I'm sure he won't survive survive any longer , right we've done everything that we could possibly do so Arya's life is in his parents hand
37:51as for me , earlier , mm . The doctor already showed it to me . Mm . Earlier , regarding the surgery , it was explained by the doctor and my heart has opened up . Honestly , sir , the mother's heart was very closed before . That's right . But after the doctor played the video
38:12directly and even introduced three people who have succeeded . It turns out , thank God , the mother has opened up now . because for that surgery , you need preparation , you need support from family , from the hospital . Okay , thank you , Ma'am . Thank you very much . The decision was hard for them to make .
38:35They have a thought and some conflicts internally , but they managed to improve the chances of a safe and successful outcome to his operation . Arya needs to lose at least a stone immediately . Diet
39:05it's hard , uncle body weight he only eats a little , now it's been 3 days and he's only had milk , uncle . Yes I don't know , uncle , how long until his weight drops , hopefully as soon as possible .
39:29100 % Arya wants to be slim . Arya , dear . Yeah . You will stay healthy and be thinner later , okay , after the surgery ,
39:50okay . Just have to be calm let's leave everything to Allah . At just 11 years old will be the youngest person to ever undergo gastric sleeve surgery . I think this kind of surgery is not a simple surgery especially in this extreme
40:10case . Honestly , it's hard , as a parent , to have your child go through surgery . I , as his father , feel scared , feel anxious . Complex bariatric procedures
40:31are not without risk . Potential complications include infection , excess bleeding and in cases where is it , stay calm and be at ease . Okay . Pray . In the name of Allah , the Most
40:52Gracious , the Most Merciful . Ready okay . Yes . Yeah . Kiss . Please . Yes , Ma'am , Sir , wait outside .
41:14Oh my . Once Arya has been given his general anesthetic , a small camera is inserted into his abdomen . Five small incisions are made to access stomach from different angles . A large portion
41:34is then cut away . The new smaller stomach is then sealed together with surgical staples . As a result of the reduction , Arya will not only want to eat much smaller portions , but he will feel fuller for longer . Almost 5 hours ,
41:59no news yet , no word on how Arya's condition is after surgery from Dr. Handi . Praise be to God , basically everything went according to plan , smoothly and normally . Thank goodness the surgery has gone well and is finished and Arya's current condition
42:19in the intensive care unit is quite good . minutes yeah . I would like to say thank you to
42:43Omni Hospital , to the doctors here , and the nurses here because they were very kind to Arya . Arya has a long way to go before he achieves a healthier weight . After surgery , we expect the patient can lose around 1 to 3 kg . every week for around one year . We hope after one
43:06year patient can drop below 100 kg . So I think it's a realistic goal for us . According to Arya , hopefully in a year I can be close to 100 or below . He has the desire to achieve something . But someone like Arya needs a lot of
43:28help and encouragement and that would help him a lot on achieving his target . If the recuperation continues to go well , Arya will rapidly lose weight and recover full mobility . Hopefully , he'll be able to fulfill his dreams of continuing in education and becoming a
43:48train driver . I want to go on the slide at the swimming pool , play soccer , ride a bike . Ah Yeah .